A registry is an organized system for the secure collection, storage, retrieval and analysis of health information for a defined patient population. It is usually focused around a specific disease or health event. Disease registries, like the Vermont Cancer Registry, provide insights about the incidence and prevalence of a specific disease and help examine trends over time. Health Event Registries, like the Vermont Immunization Registry, combine health event information from different sources into a single record to provide a consolidated record–even when individuals have received services from different providers.

We use information from registries to improve health services, inform health outreach programs, allocate health resources and engage partners in the public health community toward the larger goal of improving the health of all Vermonters.

Strict privacy requirements including the Health Information Portability and Accountability Act (HIPAA) and Vermont state law govern access to health registries and use of registry data. Health Department Registries are operated or hosted on secure hardware and software in accordance with industry standards for protected health information, including standards for security/encryption, uptime and disaster recovery.

In This Section

People with ALS can join the registry by giving their information to the National ALS Registry. By signing up, being counted, and answering brief questions about you and your disease, you can help researchers find answers to important questions.

Birth defects are common, costly, and critical conditions that affect 1 in every 33 babies born in the United States each year. 

Cancer Registry data are used to monitor efforts to reduce the burden of cancers among all Vermonters.

The Vermont Immunization Registry (IMR) is a secure health information system that contains immunization records for persons living in Vermont.


In 2006, the Vermont Legislature authorized the Vermont Department of Health to establish and operate a Prescription Drug Monitoring Program (PDMP).